PANS/PANDAS UK Charity

PANS (Paediatric Autoimmune Neuropsychiatric Syndrome) and PANDAS (Paediatric Autoimmune Neuropsychiatric Syndrome associated with Strepare devastating neuropsychiatric conditions that are currently poorly recognised, diagnosed and supported both medically and in schools.  

One estimate suggests that up to 1 in 200 children suffer from this condition. 

Please join our Facebook group PANS PANDAS UK, where you can obtain further support as and when needed.

Resources for parents including diagnostic criteria and details of local support groups. 

Resources for Medical professionals  

Resources for teachers and Schools 

Teacher training package 

Facebook group for parents/caregivers 

Facebook group for Young People age 12-17 with the condition. 

Facebook group for Adults 

Links to further Research 

Advocacy and support from the charity 

Who to contact

Contact Name
Paula Scott
Contact Position
PA to the Chair of Trustees & Community Support Executive
Telephone
07425 856181 07425 856181
E-mail
paula.scott@panspandasuk.org
Website
My service's website
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Notes

Children aged 4 to 19 who are displaying symptoms associated with the condition and/or diagnosed with the conditions.  Affected children can be in mainstream, alternative, specialist provision or electively home educated. 

Where to go

Notes

All of Oxfordshire covered.  We provide support via our Facebook group PANS PANDAS UK.

Costs

Details

Free at point of access, supported through the PANS/PANDAS UK Charity.

Availability

Referral required
No
Referral Details

Self-referral, Education provider (consent obtained), SEND Specialists and Educational Psychologists - https://www.panspandasuk.org/for-educators  

Additional Information

Providing services to
Children
Young people
Disabled children/young people

Actions

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Record managed by Oxfordshire Family Information Service

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